Alfonso Aguarón

In September 2018, Alfonso started providing consultancy to the European group of lung cancer patients, Lung Cancer Europe (LuCE).

His main role is to develop a set of projects aiming to improve access to treatment and care for lung cancer patients, raise awareness about the disease, and improve the skills of the European member groups of LuCE to help them tailor initiatives to improve support, advocacy, and outcomes in their own countries.

In April 2023, Alfonso was promoted to a new role as Policy Officer at LuCE.

Alfonso was diagnosed with Hodgkin’s Lymphoma in 2008. Due to this circumstance, he decided to become involved in patient advocacy, first as a volunteer in his home town, and later on moving to Madrid to start working on a professional full time basis in 2009.

Between 2009 and 2013 he worked for the Spanish Group for Lymphoma, Myeloma and Leukaemia Association and for the Spanish Group for Cancer Patients, first as Technical Manager and later as their International Affairs Manager.

In 2014, he joined the executive office of Myeloma Patients Europe, a European (MPE) umbrella federation of multiple myeloma patients, as Project Manager. During the following years, the organisation underwent a sustainable growth in terms of governance and accountability. As part of his duties at MPE his main focus areas were patient involvement in clinical research, access, European health policy, and capacity building among member organisations.

During his professional career, he has been involved in several multistakeholder workgroups and advisory boards, both at a national and international level.

Alfonso studied Technical Engineering in Computing Management at the University of Burgos. He developed most of his professional career in the research and development automotive field until 2009.

He speaks Spanish (Native), and English.