Evidence Based Advocacy: Lung cancer screening: discussing ethical dimensions and health data
This webinar explores the complexities of evidence-based advocacy through the lens of lung cancer screening. Using a real-world case study, we will delve into the ethical considerations and health data challenges that arise in screening programmes, focusing on how patient organisations and advocates can navigate these issues to ensure responsible and effective advocacy
This session offers valuable insights into how advocacy can shape health policies, particularly in the context of lung cancer screening. Attendees will leave with a deeper understanding of:
· The ethical dimensions of health data use.
· Practical strategies for driving evidence-based advocacy.
· How to apply these learnings to ongoing advocacy efforts in the lung cancer community.
The session was given on 4th November 2024 by:
· Lauren Michiels, PhD, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium
· Dr. Teodora Lalova-Spinks, Department of Public Health and Primary Care, Faculty of Medicine and Health Sciences, Ghent University, Belgium
Highlights on lung cancer research
The primary aim of this session is to provide attendees with the latest updates on developments and research trends in lung cancer, enhancing their understanding of both current and emerging therapies.
The session was given by Benjamin Besse, MD, PhD, Professor of Medical Oncology at Paris-Saclay University, Orsay, France, and lung cancer specialist at Gustave Roussy Cancer Campus, Villejuif.
The session was held on 4th July 2024.
Real World Data in Lung Cancer Research
The primary aim of this session was to explore how real-world data can be utilized to enhance clinical practice and policy-making in lung cancer, emphasizing the importance of data in improving patient outcomes.
The session was be given by Eleni Kokkotou, MD, MSc, PhDc, Pulmonologist and TB Specialist at the Oncology Unit, 3rd Department of Internal Medicine, "Sotiria" General Hospital, University of Athens
The session was held on 26th June 2024.
Coping with lung cancer diagnosis: Physical, social and emotional impact
Webinar on coping with lung cancer daignosis: physical, social and emotional impact.
Speaker:
– – Dr. Valeria Sebri, Doctor of Psychology at the Applied Research Unit of Health, Cognitive and Psychological Science, Istituto Europeo di Oncologia (IEO) in Milano
Coping with lung cancer: Sexuality and body image
Webinar on coping with lung cancer, sexuality and body image impact in people living with the disease.
Panelists:
– Fátima Castaño, psycho-oncologist and sexologist at MD Anderson Cancer Center Madrid and the Spanish Group of People Impacted by Lung Cancer (AEACaP)
– Merel Hennink, ROS1 lung cancer patient and patient advocate
Clinical Trials: benefits of research and investigation
Lung Cancer Europe (LuCE) held an online session on clinical trials: benefits of research and investigation.
The session was given by Dr. Denis Lacombe, CEO and Iryna Shakhnenko, Patient Relationship Manager at the European Organization for Research and Treatment of Cancer (EORTC).
The webinar was held and recorded on 22nd March 2023
Prehab and rehab within the lung cancer journey
Lung Cancer Europe (LuCE) held a dialogue on prehab and rehab within the lung cancer journey. The dialogue was recorded on 10 January 2023.
Panellists:
– Dr. Mathew Evison, Consultant Chest Physician at Wythenshawe (güizensow) Hospital in Manchester University NHS Foundation
– Hilary Neal, Clinical Nurse Specialist at The Christie NHS Foundation Trust in Manchester specialised in lung cancer and a member of Lung Cancer Nurses UK
– Grainee Sheill, Cancer Rehabilitation Physiotherapist at St James Hospital and Postdoctoral Research Fellow at the Exercise Oncology Research Group at Trinity College Dublin
The dialogue is mainly targeted for patient representatives, mainly patients and caregivers.
LuCE Webinar Dealing with side effects of lung cancer and treatment
Lung Cancer Europe (LuCE) held a webinar on how to deal with side effects of lung cancer and treatment.
The webinar was given by Jackie Fenemore, Chair of Lung Cancer Nurses UK and Merel Hennink, lung cancer patient and patient advocate at Longkanker Nederland.
The webinar was held and recorded on 18th October 2022
Music: http://www.bensound.com/royalty-free-music
What are the information needs on biomarker testing?
Lung Cancer Europe (LuCE) held a dialogue on what are the information needs on biomarker testing. The dialogue was recorded on 24th August 2022.
Panellists:
Amy Moore, VP, Global Engagement and Patient Partnerships of Lungevity
Karen Clayton. Lead Lung Clinical Nurse Specialist at East Cheshire NHS Trust, and vice chair of Lung Cancer Nurses UK
Fernanda Pautasso, Nurse Specialist at Santa Casa de Misericordia de Porto Alegre in Brazil, Patient Navigator and Member of the University of Patients and Family Caregivers UPF
Nicole Wicki, Program Director at TheSynergist.org and member of the Operational Team of the FT3
The dialogue is mainly targeted for patient representatives, mainly patients and caregivers.
How to use LuCE reports and patient evidence to influence change
Lung Cancer Europe (LuCE) held a dialogue on how to use LuCE reports and patient evidence to influence change The dialogue was recorded on 14th July 2022.
Panellists:
Ananda Plate, Executive Director Patvocates Research
Tanja Spanic, President Of Europa Donna at Europa Donna The European Breast Cancer Coalition
Diego Villalón, Founder of Más Que Ideas Foundation
The dialogue is mainly targeted for patient representatives, mainly patients and caregivers.
ASCO 2022 highlights on early stage lung cancer management
Lung Cancer Europe (LuCE) held a webinar ASCO 2022 highlights on early stage lung cancer management
The webinar was given by Dr. Jarushka Naidoo, Thoracic Oncologist focused on immunotherapy for lung cancer & immune toxicity. Beaumont RCSI Cancer Centre Dublin and Adjunct Professor Johns Hopkins University
The webinar was held and recorded on 8th July 2022
Biomarker testing and onco-gene driven lung cancer
Lung Cancer Europe (LuCE) held a webinar covering the basic concepts of biomarker testing and onco-gene driven lung cancer.
The webinar was given by Dr. Enriqueta Felip, Head of Lung Cancer Unit at the Oncology Deparment of Vall D'Hebron Hospital in Barcelona, Spain.
The webinar was held and recorded on 14th February 2022.
Treatment strategies and sequencing for people living with mutation positive lung cancer
Lung Cancer Europe (LuCE) held a webinar on treatment strategies and sequencing for people living with mutation positive lung cancer
The webinar was given by Professor Sanjay Popat FRCP PhD, Consultan Medical Oncologist, Royal Marsden Hospital and Professor of Thoracic Oncology, The Institute of Cancer Research in London, UK.
The webinar was held and recorded on 14th October 2020
Treatment strategies and sequencing for people living with wildtype (no mutation) lung cancer
Lung Cancer Europe (LuCE) held a webinar on current research lines in lung cancer.
The webinar was given by Dr. Tom Newson-Davies BSc MBBS PhD FRCP, Consultant Medical Oncologist at Chelsea & Westminster Hospital in London, UK.
The webinar was held and recorded on 1st October 2021.
Strenghtening the Lung Cancer Patient Voice in Health Policy and Regulatory Decision
Current research lines in lung cancer
Lung Cancer Europe (LuCE) held a webinar on current research lines in lung cancer.
The webinar was given by Professor Simon Ekman, Senior Consultant and Associate Professor in Oncology
at Karolinska University Hospital in Stockholm in Sweden.
The webinar was held and recorded on 29th April 2021.
Introduction to IASLC S.T.A.R.S. – Supportive Training for Advocates in Research & Science
Effective use of social media in patient organisations
Lung Cancer Europe (LuCE) held a webinar on effective use of social media in patient organisations
The webinar was given by Charles Bisaillon, CEO at Addexxo International and Communications Manager of Lung Cancer Europe (LuCE)
The webinar was held and recorded on 26th January 2021
Lung cancer molecular testing
Lung Cancer Europe (LuCE) held a webinar on lung cancer molecular testing
The webinar was given by Rolf A. Stahel, M.D., President ETOP Foundation,
President IBCSG Foundation
and Editor Cancer Treatment Reviews
The webinar was held and recorded on 8th December 2020
The role of radiotherapy in lung cancer management
Lung Cancer Europe (LuCE) held a webinar on the role of radiotherapy in lung cancer management.
The webinar was given by Virginia Ruiz Martin MD, Radiation Oncologist Consultant, Department of Radiation Oncology at the University Hospital of Burgos, Spain.
The webinar was held and recorded on 17th November 2020
ESMO 2020 lung cancer highlights
Lung Cancer Europe (LuCE) held a webinar on ESMO 2020 lung cancer highlights
The webinar was given by Professor Sanjay Popat FRCP PhD, Consultan Medical Oncologist, Royal Marsden Hospital and Professor of Thoracic Oncology, The Institute of Cancer Research in London, UK.
The webinar was held and recorded on 16th October 2020
How drug prices are determined?
Lung Cancer Europe (LuCE) held a webinar on what clinical trails are and they are conducted.
The webinar was given by Eric Low, owner and founder of Eric Low Consulting Ltd.
The webinar was held and recorded on 2nd July 2020.
What are clinical trials and how are they conducted?
Lung Cancer Europe (LuCE) held a webinar on what clinical trails are and they are conducted.
The webinar was given by Saskia Litière, Head of Statistics Department and Anastassia Negrouk, Head of Internacional Policy Department, at the European Organisation for Research and Treatment of Cancer (EORTC)
The webinar was held and recorded on 17th June 2020.
The European Medicines Agency and patient involvement in the drug approval process
Lung Cancer Europe (LuCE) held a webinar covering the role of the European Medicines Agency (EMA) and how patients and patients advocates can be involved in the drug approval process
The webinar was given by Kate Morgan, Head of Policy and Access of Myeloma Patients Europe (MPE)
The webinar was held and recorded on 26th February 2020.
Diagnosis and treatment of lung cancer
Lung Cancer Europe (LuCE) held a webinar covering the basic concepts of lung cancer diagnosis and treatment.
The webinar was given by Tanja Cufer, MD, PhD, Professor of Oncology at the Medical Faculty, University of Ljubljana in Slovenia.
The webinar was held and recorded on 12th December 2019.
LuCE Webinar "Advocating for access to treatments. What should we know?"
This webinar is aimed at organizations supporting lung cancer patients. Its purpose is to share information to engage at the national and European level, to reduce inequalities in treatment availability.
Speakers:
– Ananda Plate. CEO of Myeloma Patient Europe
– Tanja Cufer. Professor of Oncology. University Clinic Golnik. Medical Faculty Ljubljana
– Stefania Vallone. President of Lung Cancer Europe (LuCE)
Deleted video
Lung Cancer Europe (LuCE) held a webinar on lung cancer screening covering the basic concepts around this topic as well as to analyse the current implementation programmes in Europe with the aim of achieving an earlier and more precise diagnosis leading to better outcomes for people living with the disease.
The webinar is intended for an audience of advocates, patients and caregivers. It will be given by Javier Zulueta, MD, head of the Pneumology Department, co-director, Lung Cancer Area, Clinica Universidad de Navarra in Spain.
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