Reports and Position Papers

Since its establishment, LuCE has continually developed a range of reports tackling relevant challenges for the lung cancer community. Through a systematic process based on desk research and surveys, we have been able to provide evidence-based documents that truly provides insights around patient needs in these particular fields.

Being well aware of the importance of continuing generating evidence that will benefit the overall lung cancer community and the patient advocacy groups in particular, LuCE aims to produce reports and position papers by following a consistent methodology based on:

Deep desk research on current literature and scientific publications on the topic.
Interviews to lung cancer experts to gather their insights.
Survey to be disseminated across our members’ network to gather specific insights from people living with lung cancer.

To date, LuCE has published the following reports and position papers.

Reports

Financial Impact Of Lung Cancer: A European Perspective

November 2023

This report is a descriptive research analysis that explores the economic burden of lung cancer, as reported by people diagnosed with the disease and those in a caregiving capacity.

Challenges in the care pathway and preferences of people with lung cancer in Europe

November 2022

The aim of this report is to identify barriers and areas of improvement
to enhance the lung cancer care pathway. The findings of this
report stress the need for person-centred models.

Experiences and quality of life of people impacted by lung cancer in Europe

November 2021

This is an annual initiative led by lung cancer patient organisations, with the purpose of raising awareness regarding the main challenges faced by people impacted by this disease across Europe.

Psychological and social impact of lung cancer

November 2020

Lung cancer is the biggest cancer killer worldwide. In Europe, there are 470,000 new diagnoses and more than 380,000 lung cancer deaths every year.

Disparities and challenges in access to lung cancer diagnostics and treatment across Europe

February 2020

This 2020 LuCE Position Paper covers data regarding access to lung cancer treatment and diagnosis, in order to raise awareness about access inequities among patients in European countries.

Early diagnosis and screening challenges in lung cancer

November 2019

This report is an annual initiative led by lung cancer patient organisations, with the purpose of raising awareness about the biggest challenges that patients across Europe face.

Challenges in lung cancer clinical trials

November 2018

Welcome to the 3rd edition of the LuCE Report. This report is an annual initiative led by lung cancer patient organisations, with the purpose of raising awareness about the biggest challenges that patients across Europe face.

Disparities in diagnosis, care and treatment access

November 2017

After the 1st LuCE Report in 2016, in which we highlighted the main challenges in lung cancer in Europe from the patient perspective, we launch this 2nd Report to deepen our research on one of our main worries: disparities on access across Europe.

Challenges in lung cancer in Europe

November 2016

Thousands of people are diagnosed with lung cancer in Europe every year and sadly this is the biggest cancer killer. Lung cancer is one of the major public health problems today and it requires a global solution.

Position Papers

Disparities and challenges in access to lung cancer diagnostics and treatment across Europe Position Paper 2020

This LuCE Position Paper covers data regarding access to lung cancer treatment and diagnosis, in order to raise awareness about access inequities among patients in European countries.

The burden of lung cancer in Europe Position Paper 2015

With an estimated incidence of over 449,000 cases per year, lung cancer is one of the most common malignancies in Europe.